PLGD awareness week

Patients & Caregivers
A day just for you!

Webinars

A great way to expand your knowledge about Congenital Plasminogen Deficiency!

Meet Dr. Shapiro and Dr. Nakar, who have many years of experience in managing this rare disease.

Congenital Plasminogen Deficiency;
An Overview of this Rare Disease

Presented by:

Dr. Amy Shapiro

CEO/Co-Medical Director
Indiana Hemophilia & Thrombosis Center
Adjunct Professor of Pediatrics
Michigan State University

Congenital Plasminogen Deficiency;
Key Topics of Priority to Patients

Presented by:

Dr. Amy Shapiro

CEO/Co-Medical Director
Indiana Hemophilia & Thrombosis Center
Adjunct Professor of Pediatrics
Michigan State University

&

Dr. Charles Nakar

Pediatric Hematologist
Indiana Hemophilia & Thrombosis Center

PLGD Role Model

Earlier this year we invited you to share your story with us to become a PLGD Role Model.

We’re happy to present our 2018 PLGD Role Model:

Renae Stritzinger

Read her story, you will get inspired by her strength!

Case studies

Literature-based case studies of patients diagnosed with Congenital Plasminogen Deficiency

CASE STUDY: 9-month-old baby girl

CASE STUDY: 5-year-old male child

Let’s put Congenital Plasminogen Deficiency on the map!

Here’s where current patients and caregivers are located.
Are you a member yet?

Join the community this week and let’s build up the representation of this ultra-rare disease. Together we are stronger!

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See you tomorrow See you tomorrow

What’s the plan for this week?

day 2

DAY 2
Patients & Caregivers

  • Webinar: An overview of this rare disease (Dr. Shapiro)
  • Webinar: Key topics of priority to patients (Dr. Shapiro & Dr. Nakar)
  • Case study: 9-month-old baby girl
  • Case study: 5-year-old male child
  • Testimonial: 2018 PLGD Role Model
day 2

DAY 3
Healthcare Providers

  • Webinar: Clinical case studies (Dr. Nakar)
  • Video: Challenges and recommendations for optimal management (Dr. Shapiro)
  • Most common clinical manifestations
day 2

DAY 4
Wrap-up

  • New portrait of our PLGD community map
  • Thank you video
  • Online survey