PLGD awareness week

Healthcare Providers
A day just for you!

NEW ICD-10-CM CODE

DID YOU KNOW? AS OF OCTOBER 1, 2018

A new ICD-10-CM comes into effect to code for a diagnosis of Plasminogen Deficiency (type 1/type 2)

E88.02

Patients are counting on you to recognize it!

Webinar

Clinical Case Studies

Presented by:

Dr. Charles Nakar

Pediatric Hematologist
Indiana Hemophilia & Thrombosis Center

Healthcare Providers’ Reality when Managing Rare Diseases

It is often challenging for physicians to identify signs and symptoms of ultra-rare diseases such as Plasminogen Deficiency. Raise your suspicions and consider the possibility of seeing a PLGD patient in your practice!

In this video, Dr. Shapiro provides recommendations for optimal management of PLGD patients!

Multi-systemic manifestations in pediatric and adult populations

Most common clinical manifestations
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Lesions tend to occur throughout life and, in the absence of replacement therapy, tend to recur after surgical excision, hence may lead to permanent disability, such as loss of eyesight or bronchial or ureteric obstruction.

References:
Tefs K, Gueorguieva M, Klammt J, et al. Molecular and clinical spectrum of type I plasminogen deficiency: a series of 50 patients. Blood. 2006;108(9): 3021-3026.
Shoseyov D. Congenital plasminogen deificiency with respiratory complication. PowerPoint presentation at Hadassah Medical Center Jerusalem: Jerusalem, Israel.

Stay informed!

Enroll for updates, educational resources and information on Congenital Plasminogen Deficiency.

See you tomorrow See you tomorrow

What’s the plan for this week?

day 2

DAY 2
Patients & Caregivers

  • Webinar: An overview of this rare disease (Dr. Shapiro)
  • Webinar: Key topics of priority to patients (Dr. Shapiro & Dr. Nakar)
  • Case study: 9-month-old baby girl
  • Case study: 5-year-old male child
  • Testimonial: 2018 PLGD Role Model
day 2

DAY 3
Healthcare Providers

  • Webinar: Clinical case studies (Dr. Nakar)
  • Video: Challenges and recommendations for optimal management (Dr. Shapiro)
  • Most common clinical manifestations
day 2

DAY 4
Wrap-up

  • New portrait of our PLGD community map
  • Thank you video
  • Online survey