PLGD awareness week

Welcome to Plasminogen Deficiency Awareness Week 2018!

Raising awareness
is the best way to increase recognition of Congenital Plasminogen Deficiency.

This ultra-rare disease is often undetected and undiagnosed.
Please, play your part by sharing this video to raise awareness about this disease!

Multi-Systemic Manifestations of Congenital Plasminogen Deficiency

Lesions can impact many organ systems. They can differ in size and appear in different locations over time. Not all lesions are obvious and visible!

Let’s put Congenital Plasminogen Deficiency on the map!

Here’s where current patients and caregivers are located.
Are you a member yet?

Join the community this week and let’s build up the representation of this ultra-rare disease. Together we are stronger!

*Required field

Have you asked your questions to our expert panel yet?

It’s time to get your questions answered!

Meet our expert panel of doctors

Dr. Amy Shapiro
CEO/Co-Medical Director
Indiana Hemophilia & Thrombosis Center
Adjunct Professor of Pediatrics
Michigan State University

Dr. Charles Nakar
Pediatric Hematologist
Indiana Hemophilia & Thrombosis Center

Dr. Per Mortem Sandset
Professor/Vice Rector
University of Oslo, Norway
Senior Consultant
Oslo University Hospital Rikshospitalet

Be a part of PLGD Awareness Week, and play an important role by increasing your understanding of this ultra-rare disease.

SHARING is part of healing!TM

See you tomorrow See you tomorrow

What’s the plan for this week?

day 2

DAY 2
Patients & Caregivers

  • Webinar: An overview of this rare disease (Dr. Shapiro)
  • Webinar: Key topics of priority to patients (Dr. Shapiro & Dr. Nakar)
  • Case study: 9-month-old baby girl
  • Case study: 5-year-old male child
  • Testimonial: 2018 PLGD Role Model
day 2

DAY 3
Healthcare Providers

  • Webinar: Clinical case studies (Dr. Nakar)
  • Video: Challenges and recommendations for optimal management (Dr. Shapiro)
  • Most common clinical manifestations
day 2

DAY 4
Wrap-up

  • New portrait of our PLGD community map
  • Thank you video
  • Online survey